cereta: (talkingslash)

[personal profile] cereta 2025-01-30 04:28 pm (UTC)(link)
My spouse is a federal employee. He has put in seventeen years of loyal, dedicated service, often going above and beyond (he was, for example, the only staff person who went into the office during the pandemic, and thus had to carry out all kinds of duties besides his, not to mention working through two shutdowns while his salary was help hostage). He's at the top of his pay grade, which means they could fire him and hire two newbies. I'm not saying this will happen. We're not assuming it will happen. We're just not ruling it out, either, and we've had several conversations about what it would mean to our family.

There are moments when I'm so angry, I can barely see.
katiedid717: (Default)

[personal profile] katiedid717 2025-01-30 06:16 pm (UTC)(link)
It's definitely a rough position to be in. My sister is a federal employee working overseas; she and her husband had already been talking about getting back stateside after one of their kids was diagnosed with a genetic condition, and that conversation escalated after the election. I work at a major university in the northeastern US and she's had some promising interviews/conversations with the Capital Projects team, but now there are concerns circulating around campus about whether the restrictions with grants and funding could have a negative impact on the university. I'm really hoping she's offered a position here and can move back home, but I would also feel terrible if they moved here just to have to deal with layoffs etc (buuut at least there's plenty of family in the area who could help them stay at least somewhat on their feet. Well, except maybe for my nephew's weekly treatments but hey, little kids don't need to be able to have their blood clot properly, right?)
cereta: two blue clay tea cups with tan flowers (tea cups)

[personal profile] cereta 2025-01-30 06:50 pm (UTC)(link)
I'm so sorry your sister is going through all of that.
katiedid717: (Default)

[personal profile] katiedid717 2025-01-30 11:50 pm (UTC)(link)
I'm sorry that your husband has such a complicated situation also, especially being so close tenure-wise to qualifying for a pension. My sister has only been government for 5 years.
magid: (Default)

[personal profile] magid 2025-01-30 11:30 pm (UTC)(link)
I'm so sorry about your sister and her family.

Just in case it's useful, friends who discovered their kid was a severe hemophiliac at the kid's ritual circumcision gathering found a lot of support from the New England Hemophilia Association (they also help with other bleeding/clotting disorders).
(I think I could set up an introduction if your sister would like to meet someone who's kid has made it to adulthood with his every-other-day infusions. I'm in metro Boston meatspace.)
katiedid717: (Default)

[personal profile] katiedid717 2025-01-30 11:36 pm (UTC)(link)
Ooh awesome! Her son was diagnosed about 3 months ago, he was only 8 months old at the time. He's been getting weekly (factor VIII? I think that's his deficiency) injections for the past couple months (after a month of infusions) and seems to be doing pretty great! Her family is currently in Italy, but she's basically looking at jobs in New Haven CT and Providence RI, so if she does end up getting something over here, I will definitely share this information with her! Thank you so much
magid: (Default)

[personal profile] magid 2025-01-30 11:43 pm (UTC)(link)
I know that in addition to the regular stuff, their family really enjoys going to the Hole in the Wall Gang camp for hemophilia week, sometime in the summer. When his age is still measure in months, it's unlikely to be particularly fun for him, but finding other parents in similar situations is also good. And of course, it's more fun for him as he gets older.
katiedid717: (Default)

[personal profile] katiedid717 2025-01-30 11:46 pm (UTC)(link)
Yeah, little guy has two weeks until his first birthday still - I'm honestly glad that the doctors caught it as a fluke before he was really mobile!

I was looking at the information about NEHA family camp, looks like the actual programming for kids starts around age four so he still has a couple years on that also. Also. But definitely looks like it would be a good organization for her to look into if she ends up back in New England.