magid: (Default)

[personal profile] magid 2025-01-30 11:43 pm (UTC)(link)
I know that in addition to the regular stuff, their family really enjoys going to the Hole in the Wall Gang camp for hemophilia week, sometime in the summer. When his age is still measure in months, it's unlikely to be particularly fun for him, but finding other parents in similar situations is also good. And of course, it's more fun for him as he gets older.
katiedid717: (Default)

[personal profile] katiedid717 2025-01-30 11:46 pm (UTC)(link)
Yeah, little guy has two weeks until his first birthday still - I'm honestly glad that the doctors caught it as a fluke before he was really mobile!

I was looking at the information about NEHA family camp, looks like the actual programming for kids starts around age four so he still has a couple years on that also. Also. But definitely looks like it would be a good organization for her to look into if she ends up back in New England.